Overview

The aims of this study were to: survey adults on the autism spectrum, those seeking a diagnosis and relatives about their experience of diagnostic services. We also surveyed UK professionals who diagnose adults with autism spectrum conditions, about current NHS diagnostic care pathways.

Using information from the surveys, and discussion groups, the study aimed to investigate what people consider is the best way to assess and diagnose autism spectrum conditions across NHS services.

In addition, the study will carried out a review of the evidence underpinning measures currently used to diagnose autism spectrum conditions in adults. 

Finally, during the study a new diagnostic interview was developed and piloted for use to identify ASCs in adults in situations when there is little or no early developmental history available.

Who is involved in this study?

Sarah Wigham, Senior Research Associate

‌Jeremy Parr‌

• Professor in Paediatric Neurodisability
• Honorary Consultant Paediatrician, Newcastle upon Tyne Hospitals NHS Foundation Trust
• Email: jeremy.parr@ncl.ac.uk
• Tel: 0191 282 5966
• Studies: Adult Autism Spectrum Cohort-UK; ASD-UK; Daslⁿe; FEEDS study; Improving the Health of Older Autistic People; Methods of Diagnosis for ASC in Adults; PAT-A; Transition
• Recently Completed Studies: MeASURe; Measuring Anxiety in ASD; WHOQOL-BREF and Autistic Adults

Also involved in the project from the Neurodevelopment and Disability team are:

Sarah Wigham

• Research Associate

More information        

Email: sarah.wigham@ncl.ac.uk                                             

Other research

Methods of diagnosis for ASC in adults sits within the 'Lifecourse studies of neurodevelopmental disorders' and 'Clinical service development' themes.

If you are looking for other research linked to ASD, Mental Health, or Outcome Measurement, please view the relevant conditions and topics page for a full list of studies.