Daslne is the Database of Children with Autism Spectrum Disorder Living in the North East. It was launched in October 2003 and now holds information about around 1700 children and young people. The aim is to give as complete a picture as possible of the numbers and needs of children and young people with Autism Spectrum Disorder (ASD) living in Northumberland, Tyne & Wear. The database was set up from the start as a partnership between parents and professionals from health, education and social services.
The primary aims are to:
- assist local authorities, health services and voluntary bodies in planning services for children with ASD and their families by making available reports on numbers and needs of children
- be a vehicle for allowing families to be more involved in service planning
- allow analysis of data to investigate, for example, trends over time or geographical variations
- be a representative sampling frame for research studies
Daslne works closely with ASD-UK, the national autism family research database.
Who is involved in this study?
The Principal Investigator for this study is Prof Helen McConachie
Also involved in the project from the Neurodevelopment and Disability team are:
- Clinical Senior Lecturer
- Honorary Consultant Paediatrician, Newcastle upon Tyne Hospitals NHS Foundation Trust
Call Alison Mulvenna: 0191 282 1400
Daslne sits within several themes: 'Lifecourse studies of neurodevelopmental disorders'; 'Engaging with young people and their families'; 'Understanding neurodisability' and 'Clinical service development'.
If you are looking for other research linked to ASD, Childhood Neurodisability, Mental Health, or Quality of Life and Participation, please view the relevant conditions and topics page for a full list of studies.