The Futures project is looking at outcomes after acquired brain injury (ABI) in older children, with particular reference to whether differences in the dose or content of rehabilitation children receive is associated with differences in severity-adjusted outcome. We are currently seeking full NIHR Programme Grants for Applied Research (PGFAR) funding for this work. Development work was funded by an NIHR Programme Development Grant (March 2015 - May 2016) that supported methods development in several pertinent areas.

  • The epidemiology of ABI remains incompletely described. We are analysing UK Hospital Episode Statistics (HES) data on incidence, disposition and treatment of severe paediatric ABI.
  • One major challenge has been description of rehabilitation dose and content. We have prototyped and are continuing to develop a new framework (PRISM: Paediatric Rehabilitation IngredientS Measure) for the description of rehabilitation content. We have also piloted novel technological solutions using Bluetooth "tagging" devices to identify the times, duration, locations and people involved in "proximity events" between children and professionals.

We have also piloted the feasibility of using routinely collected schools' data on pupils' progress through the National Curriculum in monitoring long-term outcomes after ABI. 

Who is involved in this study?

The Principal Investigator for this study is Dr Rob Forsyth

Rob Forsyth‌‌

  • Senior Lecturer
  • Consultant Paediatric Neurologist, Newcastle upon Tyne Hospitals NHS Foundation Trust
  • Email: rob.forsyth@ncl.ac.uk
  • Tel: 0191 282 5742
  • Studies: Futures

More information        

Email: futures@ncl.ac.uk                                                

Twitter: @FuturesRehab

Call: 0191 282 1385

Other research

Futures sits within the 'Engaging with young people and their families'; 'Effects and acceptability of treatments and interventions'; 'Understanding the complexities of childhood neuro-disability' and 'Clinical Service Development' research themes.

If you are looking for other research linked to Acquired Brain Injury, Quality of Life and Participation, Outcome Measurement or Technology, please view the relevant conditions and topics page for a full list of studies.