Overview

The Autism Spectrum Database - UK (ASD-UK) is the UK research family database of children with an autism spectrum disorder (ASD). Autism spectrum research often requires large numbers of participants. ASD-UK collects information about children with on the autism spectrum which will enable large studies to be undertaken that address important research questions.


The aims of ASD-UK are:

• To collect data about children on the autism spectrum and their families that will allow important research questions to be answered
• To help researchers recruit families to studies about autism that may lead to advances in the care and treatment of children
• Allow families to take part in research that aims to answer important questions about autism

By taking part in ASD-UK, parents are able to participate in research that might result in improvements in the care and treatment of children now and in the future, and have access to research findings.

To date, over 2000 families have joined. Between ASD-UK and its partner database Daslⁿe in North East England, over 4000 families of children have given information and can be contacted about research.

Who is involved in this study?

The Principal Investigator for this study is Dr Jeremy Parr

‌Jeremy Parr‌

• Professor in Paediatric Neurodisability
• Honorary Consultant Paediatrician, Newcastle upon Tyne Hospitals NHS Foundation Trust
• Email: jeremy.parr@ncl.ac.uk
• Tel: 0191 282 5966
• Studies: Adult Autism Spectrum Cohort-UK; ASD-UK; Daslⁿe; FEEDS study; Improving the Health of Older Autistic People; Methods of Diagnosis for ASC in Adults; PAT-A; Transition
• Recently Completed Studies: MeASURe; Measuring Anxiety in ASD; WHOQOL-BREF and Autistic Adults

Also involved in the project from the Neurodevelopment and Disability team are:

‌‌Helen McConachie‌

• Strategic Research Adviser
• Professor of Child and Adolescent Clinical Psychology

Alex Petrou

• Research Associate

Faye Wolstenhulme

• Programme Administrator

Deborah Garland

• ASD Family Support Manager

More information        

Website: www.asd-uk.com

Email: asd-uk@ncl.ac.uk                                                

Twitter: @asduk_2011

Call Faye Wolstenhulme: 0191 282 5965

Other research

ASD-UK sits within several themes:  'Lifecourse studies of neurodevelopmental disorders';  'Engaging with young people and their families';  'Understanding neurodisability' and 'Clinical service development'.  

If you are looking for other research linked to ASD, Childhood Neurodisability, Mental Health, or Quality of Life and Participation, please view the relevant conditions and topics page for a full list of studies.