Adult Autism Spectrum Cohort - UK
Very little research has been undertaken into the life experiences of adults and older people on the autism spectrum, and how these change with time. To address this significant research gap, in January 2015, we began a research programme about the life experiences of adults on the autism spectrum and their relatives/carers. This research is undertaken in partnership with the autism community - adults on the autism spectrum are part of the research team
The adult and relative cohort studies collect information that can be used to inform policy, and develop support and services for adults on the autism spectrum and relatives
NHS Trusts and voluntary organisations across the UK are helping to recruit to the study. Participants join online on the study website (research.ncl.ac.uk/adultautismspectrum) or complete paper-based materials that we can provide.
Who is involved in this study?
The Principal Investigator for this study is Dr Jeremy Parr
- Professor in Paediatric Neurodisability
- Honorary Consultant Paediatrician, Newcastle upon Tyne Hospitals NHS Foundation Trust
- Email: firstname.lastname@example.org
- Tel: 0191 282 5966
- Studies: Adult Autism Spectrum Cohort-UK; ASD-UK; Daslne; FEEDS study; Improving the Health of Older Autistic People; Methods of Diagnosis for ASC in Adults; PAT-A; Transition
- Recently Completed Studies: MeASURe; Measuring Anxiety in ASD; WHOQOL-BREF and Autistic Adults
Also involved in the project from the Neurodevelopment and Disability team are:
- Strategic Research Adviser
- Professor of Child and Adolescent Clinical Psychology
- Professor of Child & Adolescent Psychiatry
- Honorary Consultant Child and Adolescent Psychiatrist
- Research Associate
- Programme Administrator
- ASD Family Support Manager
And from outside the team are:
- Dr Tom Berney (Developmental Psychiatrist)
Call Dr Alex Petrou: 0191 282 1380
ASC-UK sits within the 'Lifecourse studies of neurodevelopmental disorders' and the 'Clinical service development' research themes.