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Protocol: The SPARCLE
1 protocol was published in BioMed Central Public Health. This sets out precisely
what we planned to do and how we would analyse the data. The purpose
of publishing in advance of analysis was to avoid being accused of changing
our analysis plan and hypotheses to fit the data.
The SPARCLE 2 protocol is also published.
Analysis of potential for bias:
published in BioMed Central Public Health an analysis of the potential for
bias and how we will deal with this in our analysis.
The work undertaken
by Kay Tisdall, social scientist in Edinburgh, is complete. This sets out
how the seven European countries vary at a national level with respect to
factors such as anti-discrimination policy, education policy, transport
policy, health service provision, social security benefits etc. The report
is in two volumes published at Newcastle University, the first set out by
contextual factor, the second by country.Volume 1 by
Contextual Factor (.pdf)
Volume 2 by Country (.pdf)
instrument to assess how families experience their environment:
This has been
carefully developed and a number of papers report how this was done.
Literature Review published
in Developmental medicine and Child Neurology.
In depth qualitative interviews
published in Pediatric Rehabilitation
Focus Group study across
Europe published in Child.
describing the instrument published in Disability and Rehabilitation