Primary care-led post diagnostic Dementia Care (PriDem): developing evidence-based, person-centred sustainable models for future care
Receiving a diagnosis of dementia may have a significant and lasting psychological and emotional impact on people with dementia and their families, requiring a period of adjustment and ongoing support. However, post diagnostic dementia care in England is poorly coordinated with marked geographical differences. The Alzheimer’s Society Report in 2015 found that 49% people with dementia said they received insufficient support after diagnosis.
Since people with dementia and their families receive most of their care from their GP, the 2016 World Alzheimer Report recommended that future post diagnostic dementia care should be led by primary care. This is similar to the care of other patient groups, such as people with diabetes. By providing post-diagnostic support in primary care, access to this and other expert services (such as old age psychiatry) could be much improved.
The PriDem programme has been funded by the Alzheimer’s Society to develop and test a ‘good practice’ model of primary care co-ordinated, post diagnostic dementia care. This will be achieved through a number of workstreams (WS).