Publications

Publications from the Autism Lifecourse and Ageing Research Programme:

Publications learning about the lives of autistic people in adulthood

Tracey L Finch, Joan Mackintosh, Alex Petrou, Helen McConachie, Ann Le Couteur, Deborah Garland, Jeremy R Parr. "We couldnt think in the box if we tried.  We can't even find the damn box": A qualitative study of the lived experiences of autistic adults and relatives of autistic adults. 2022

Publications relating to Quality of Life measures for autistic adults
David Mason, Jacqui Rodgers, Deborah Garland, Colin Wilson, Jeremy R Parr, Helen McConachie. Measuring quality of life in austitic adults: The reliability and validity of the Brief Version of the World Health Organization Quality of Life scale 2022
 
David Mason, Jeremy Parr, Deborah Garland, Alex Petrou, Jacqui Rodgers, Helen McConachie. Predictors of quality of life of autistic adults in UK. Autism Research 2018
 
Helen McConachie, David Mason, Jeremy Parr, Deborah Garland, Colin Wilson, Jacqui Rodgers. Enhancing the validity of a Quality of Life Measure for Autistic People. Journal of Autism and Developmental Disorders 2018
 
David Mason, Joan Mackintosh, Helen McConachie, Jacqui Rodgers, Tracy Finch, Jeremy Parr. Quality of Life for older autistic people: The impact of mental health difficulties. Research in Autism Spectrum Disorders 2019
 
Publications relating to access to physical healthcare services for autistic adults
Samuel Brice, Jacqui Rodgers, Barry Ingham, David Mason, Colin Wilson, Mark Freeston, Ann Le Couteur, Jeremy R Parr. The importance and availability of adjustments to improve acess for autistic adults who need medical and physical healthcare: findings from UK surveys 2021
 
David Mason,Barry Ingham,Heather Birtles,Cos Michael,Clare Scarlett, Ian A James,Toni Brown,Marc Woodbury-Smith,Colin Wilson,Tracy Finch,Jeremy R Parr: How to improve healthcare for autistic people: A qualitative study of the views of autistic people and clinicians
 
David Mason, Barry Ingham, Marc Woodbury-Smith, Cos Michael, Toni Brown, Ian James, Clare Scarlett, Christina Nicolaidis, Anna Urbanowicz, Heather Birtles and Jeremy Parr. A systematic review of what barriers and facilitators prevent and enable physical healthcare services access for autistic adults. Journal of Autism and Developmental Disorders 2019
 
Publications relating to methods of diagnosis for ASD in adults
Sarah Wigham, Jacqui Rodgers, Tom Berney, Ann Le Couteur, Barry Ingham & Jeremy Parr. Psychometric properties of structured questionnaires and diagnostic measures for autism spectrum disorders in adults: systematic review. Autism 2018
 
Wigham, S., Ingham, B., Le Couteur, A., Berney, T., Ensum, I., & Parr, J. R. Development and Initial Utility of the Autism Clinical Interview for Adults: A New Adult Autism Diagnostic Measure. Autism in Adulthood 2020
 
Publications relating to anxiety in autistic adults
Rodgers, J., Farquhar, K., Mason, D., Brice, S., Wigham, S., Ingham, B., Freeston, M. and Parr, J.R. Development and Initial Evaluation of the Anxiety Scale for Autism-Adults. Autism in Adulthood 2020.
 
 

Further relevant publications, from outside of the programme:

These include papers and reports around priority research areas, and participation in research by autistic adults.

Wigham, S., McKinnon, I., Reid, K., Milton, D., Lingam, R., & Rodgers, J. (2021): Questionnaires used in complex trauma intervention evaluations and consideration of their utility for autistic adults with mild intellectual disability: A systematic review,Research in Developmental Disabilities (17) 104039
 
Georgina Warner, Jeremy Parr, James Cusack. Workshop Report: Establishing Priority Research Areas to Improve the Physical Health and Well-Being of Autistic Adults and Older People. Autism in Adulthood 2018.
 
Fletcher-Watson, S., Adams, J., Brook, K., Charman, T., Crane, L., Cusack, J., Leekam, S., Milton, D., Parr, J.R., Pellicano, E. Making the future together: shaping autism research through meaningful participation. Autism 2018
 
Amanda Roestorf, Dermot M Bowler, Marie K Deserno, Patricia Howlin, Laura G Klinger, Helen McConachie, Jeremy R Parr, Patrick Powell, Barbara F van Heijst, Hilde M Geurts. Older Adults with ASD: The Consequences of Aging. Insights from a siers of Special Interest Group sessions held at the International Meeting for Autism Research 2016-2017. Research in Autism Spectrum Disorders Special Issue: Growing Older with Autism. 2019. 
 
McConachie, H., Wilson, C., Mason, D., Garland, D., Parr, J., Rattazzi, A., Rodgers, J., Skevington, S., Uljarevic, M., Magiati, I. What's important in measuring quality of life? Reflections by autistic adults in four countries. Autism in Adulthood 2019. 
 
Herrema, R., Garland, D., Osborne, M., Freeston, M., Honey, E., Rodgers. J.  Mental wellbeing of family members of autistic adults. JADD 2017
 
Howes, O.D., Rogdaki, M., Findon, J.L., Wichers, R.H., Charman, T., King, B.H., Loth, E., McAlonan, G.M., McCracken, J.T., Parr, J.R., Povey, C., Santosh, P., Wallace, S., Simonoff, E., Murphy, D.G. Autism spectrum disorder: consensus guidelines on assessment, treatment and research from the British Association for Psychopharmacology. Journal of Psychopharmacology 2017
 
Ailsa Russell, Kate Cooper, Stephen Barton, Ian Ensum, Daisy Gaunt, Jeremy Horwood, Barry Ingham, David Kessler, Chris Metcalfe, Jeremy Parr, Dheeraj Rai, Nicola Wiles. Protocol for a feasibility study and randomised pilot trial of a low intensity psychological intervention for depression in adults with autism: the Autism Depression Trial (ADEPT). BMJ Open 2018. 
 
Ailsa Russell, Kate Cooper, Stephen Barton, Ian Ensum, Daisy Gaunt, Jeremy Horwood, Barry Ingham, David Kessler, Chris Metcalfe, Jeremy Parr, Dheeraj Rai, Nicola Wiles. Randomised pilot trial of a low intensity psychological intervention for depression in adults with autism: The Autism Depression Trial (ADEPT). NIHR HTA Journal 2019. 
 
Ailsa Russell, Kate Cooper, Stephen Barton, Ian Ensum, Daisy Gaunt, Jeremy Horwood, Barry Ingham, David Kessler, Chris Metcalfe, Jeremy Parr, Dheeraj Rai, Nicola Wiles. The feasibility of low intensity psychological therapy for co-occurring depression in adult autism: The ADEPT study - a pilot randomised controlled trial. Autism 2019