In June 2014, we held a series of consultation meetings with 34 adults on the autism spectrum, relatives, partners and carers. These meetings involved getting the views of the community about our research methods and plans. We consulted the community about our information sheets and consent forms. We also asked questions about methods - how should we go about collecting information?
What we learned:
In July 2014, we consulted the community about questionnaires we would like to use. These included the adult and relative questionnaire that we developed that looked at aspects of the lives of adults and their relatives. We also gathered the community's thoughts about other questionnaires measuring autism behaviours, quality of life and adaptive behaviour.
What we learned
Of course different people have different opinions about this research, how it should be carried out and what are the important research questions that need to be asked.
If you would like to send any opinions or thoughts you may have about our research please email us.
Here are two videos about why this important piece of research is required: