Projected Impact

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This project has considerable potential to benefit people with brain tumours, their family, and clinical practice. It is the first step in a long-term strategy to develop, test and implement a supported self-management programme for adults living with a brain tumour.

The self-management programme developed will provide an evidence-based means of producing meaningful improvements in the lives and wellbeing of people living with a brain tumour. The programme will empower people to manage the consequences of their diagnosis, bringing positive changes in quality of life, and helping people to participate more fully in home, work, and community life. The programme may also decrease use of healthcare services.

1-2 Years Impact

Publication of the systematic review (a summary of results from available self-management intervention studies) may:

1. Stimulate the research community to develop self-management interventions for other chronic conditions, particularly those which have been so far neglected.

2. Raise awareness among health professionals of the benefits of self-management, leading them to promote, encourage and support such activities among the people they support.

3-5 Years Impact

By this time, the project will have demonstrated that supported self-management is possible among (at least some) people living with a brain tumour.

Distributing the findings in a way that is understandable to the public may stimulate people living with a brain tumour to initiate new self-management strategies.

Distributing the findings in a scientific manner (i.e. publish in journals) may encourage clinical teams to place greater emphasis on supporting self-management in brain tumour follow-up.

5-10 Years Impact

By this time, the project will have shown whether self-management is both clinically and cost effective in improving quality of life in adults living with a primary brain tumour. This has the potential to lead to implementation in routine clinical practice, yielding quality of life and other benefits to the adult primary brain tumour population.