TraPCAf Research Highlights the Pressures of Parkinson’s Caregiving in Kenya

Among them was Brenda Mghendi, who presented findings from her study, Lived Experiences and the Weight of Parkinson’s Caregiving in Kenya.

Drawing on 29 in-depth interviews with informal caregivers in Nairobi and Kilifi, the study explored the everyday realities of caring for people living with Parkinson’s disease and the challenges caregivers face. The findings revealed that caregiving involves multiple, interconnected pressures, including emotional and physical exhaustion, financial strain, disruptions to employment and education, and changes in family and social life.

A key takeaway from the research is that supporting caregivers requires more than caregiver-level interventions. Improving the lives of families affected by Parkinson’s in Kenya also calls for more affordable and accessible medication, services closer to communities, and decentralised access to specialist neurological care.

Read the full extract here: https://www.mdsabstracts.org/abstract/lived-experiences-and-the-weight-of-parkinsons-caregiving-in-kenya/

Last modified: Fri, 23 Oct 2026 16:38:32 BST