External Advisory Board

The External Advisory Board was a steering group which offered expert advice and oversight for the Programme. The board was made up predominately of independent members, with representatives from the voluntary sector and from families affected by transition. The External Advisory Board did not have responsibility for the Programme (this rested with the Co-applicants) however it offered advice and independent challenge to the Programme.

Membership

Simon Pleydell, Chairman

Allan Colver, Chief Investigator

Shona Chambers, Cerebra

Lizzie Chambers, Short Lives

Scott Wilkes, GP, Newcastle University

Carl May, Professor Medical Sociology, Southampton University

Jim Mackey, Chief Executive, Northumbria Healthcare NHS Foundation Trust

Marij Roebroeck, Researcher, Rotterdam

AnneLoes Van Staa, Researcher, Rotterdam

Anisoara Jardim, National Institute for Health Research

Two Young People Representatives

One Parent Representative

Two Representatives from Transition Programme Management Board (rolling)