Objectives

Aim: To co-develop a pilot patient reported outcome measure (PROM) that will holistically capture the impact of no longer eating and drinking, to inform how patient care can be improved.

Objectives:

  1. To determine the impact of no longer eating and drinking from the perspectives of patients, caregivers and healthcare professionals, using mixed methods to inform objective 2.

 

  1. To co-develop a list of items for a pilot PROM suitable for the study population (adults who no longer eat and drink)

 

  1. To evaluate content validity of the pilot PROM using cognitive debriefing interviews and guided by the Consensus-based Standards for the selection of health Measurement Instruments (COSMIN) Framework.