Children with neurodisability and their families rely on health, education, and social care services to achieve the best possible outcomes. Yet support can vary significantly between areas, leading to inequalities in access, experience, and quality of care. This NIHR-funded Programme Development Grant brings together researchers, healthcare professionals, educators, social care partners, disabled young people, and parent carers to understand what families need, what services currently provide, and how support can be improved. Together, we are developing the foundations for a future national programme of research that will identify evidence-based, equitable, and family-centred models of care that can be delivered effectively across the UK.

This project aims to help ensure that every child with neurodisability and their family can access the right support, in the right place, at the right time.

The Programme Development Grant has 5 work packages