Providing end of life care for people with dementia with complex needs is often challenging and we need to understand how end of life care is currently delivered to people with dementia and their families. To achieve this we will use a range of methods including telephone and face-to-face interviews as well as observations of current practice.
We will interview professionals about their views and experiences of providing and commissioning end of life care to people with dementia in a range of services and settings. We will ask professionals, people with dementia and family carers to define best practice, and identify factors that influence the extent to which this is actually achieved when providing care.
The aim of this research is to support providers and commissioners to identify and deliver good quality, community-based end of life care in dementia; this will be achieved through four phases.