Project Outputs
On this page you can find downloadable versions of any outputs from the Ways Ahead project. This includes lay summaries of findings, scientific publications, and conference presentations, so that everyone can benefit from this research.
Study protocol PDF 427Kb
This is the detailed version of the study protocol, providing an in-depth understanding of the Ways Ahead project.
Summary of interview findings PDF 180Kb
This document summarises the main findings from interviews with people living with a brain tumour, family and friends, and healthcare professionals.
Summary of co-design findings PDF 212Kb
This document summarises the main findings from co-design activities with people living with a brain tumour, family and friends, and healthcare professionals.
Publications
Below are the links to the full-texts of all publications from the project so far.
Study protocol (BMJ Open) PDF 847Kb
This is a condensed version of the study protocol, with focus on the background, rationale, and methodology of the Ways Ahead project, published in BMJ Open, .
Self-management brief report PDF 493Kb
This is a reflection on the key areas that need to be addressed to improve the development and evaluation of self-management interventions in cancer survivors, published in Journal of Cancer Education.
Unmet needs systematic review PDF 661Kb
A systematic review on the development, content, and quality of available instruments to assess unmet needs in advanced cancer patients has been published in Journal of Cancer Survivorship.
Health-related quality of life systematic review PDF 1,033Kb
A systematic review on health-related quality of life in adults with low-grade gliomas has been published in Quality of Life Research.
Self-management interventions systematic review PDF 2,159Kb
A systematic review on the characteristics and components of self-management interventions for improving quality of life in cancer survivors has been published in Cancers.
Peoples' experiences of living with a brain tumour PDF 629Kb
Following the interviews with people with brain tumours, a qualitative analysis to understand how people experience the impact of living with a brain tumour on day-to-day life has been published in Neuro-Oncology Practice.
People with brain tumours' engagement in self-management PDF 620Kb
Following the interviews with people with brain tumours, a qualitative analysis to understand how people living with a lower-grade glioma engage in self-management has been published in Journal of Cancer Survivorship.
Barriers to self-management for people with brain tumours PDF 1,027Kb
Following the interviews with people with brain tumours, a qualitative analysis to understand the barriers and facilitators to self-management for people with lower-grade gliomas has been published in Journal of Cancer Survivorship.
People with brain tumours' experiences of work PDF 923Kb
Following the interviews with people with brain tumours, a qualitative analysis to understand the work experiences of people living with an oligodendroglioma has been published in BMJ Open.
Nature and quality of support networks for informal caregivers PDF 385Kb
Following the interviews with partners/family, a qualitative analysis to understand the nature and quality of support networks for people involved in the care of someone living with a lower-grade glioma has been published in European Journal of Cancer Care.
Emotional impact of informal caregiving PDF 758Kb
Following the interviews with partners/family, a qualitative analysis to understand the emotional impact of informal caregiving for someone with a lower-grade glioma has been published in Qualitative Health Research.
Role and responsibilities of being an informal caregiver PDF 534Kb
Following the interviews with partners/family, a qualitative analysis to understand the role and responsibilities of being an informal caregiver for someone living with a lower-grade glioma has been published in Neuro-Oncology Practice.
Implementation of supported self-management for people with brain tumours PDF 554Kb
Following the interviews with healthcare professionals and people with brain tumours, a qualitative analysis to understand the implementation considerations for supported self-management in people with lower-grade gliomas has been published in Health Expectations.
Conference presentations
Below are links to the posters and presentation slides that have been presented at numerous national and international conferences, starting with the most recent.
IPOS 2023 Self-management interventions review presentation PDF 902Kb
These are the presentation slides for the systematic review on characteristics and components of self-management interventions for cancer survivors, presented at the International Psycho-Oncology Society (IPOS) 2023 conference.
IPOS 2023 Patient impact experiences presentation PDF 614Kb
These are the presentation slides for the impact experiences of people living with a low-grade glioma, presented at the International Psycho-Oncology Society (IPOS) 2023 conference.
IPOS 2023 Family emotional impact presentation PDF 639Kb
These are the presentation slides for the emotional impact of being an informal caregiver for someone living with a low-grade glioma, presented at the International Psycho-Oncology Society (IPOS) 2023 conference.
IPOS 2023 Family support networks poster PDF 543Kb
This is the poster for the nature and quality of support networks for people involved in the care of someone living with a low-grade glioma, presented at the International Psycho-Oncology Society (IPOS) 2023 conference.
BPOS 2023 Patient factors influencing self-management presentation PDF 600Kb
These are the presentation slides for the factors influencing self-management in people living with a low-grade glioma, presented at the British Psycho-Oncology Society (BPOS) 2023 conference.
BPOS 2023 Family role poster PDF 518Kb
This is the poster for the role and responsibilities of family/friends involved in the support of people living with a low-grade glioma, presented at the British Psycho-Oncology Society (BPOS) 2023 conference.
Cancer and work 2022 Patient work experiences presentation PDF 336Kb
These are the presentation slides for the work experiences of people living with a low-grade glioma, presented at the Cancer, Work and Employment 2022 conference.
BPOS 2022 Patient engagement in self-management presentation PDF 470Kb
These are the presentation slides for the self-management strategies used by people living with a low-grade glioma, presented at the British Psycho-Oncology Society (BPOS) 2022 conference.
BPOS 2022 Healthcare professional support poster PDF 475Kb
This is the E-poster for the healthcare professional perceived barriers and facilitators to support provision for people living with brain tumours, presented at the British Psycho-Oncology Society (BPOS) 2022 conference.
NCRI 2021 Quality of life review E-poster PDF 141Kb
This is the E-poster for the quality of life in adult low-grade gliomas systematic review that was presented at the National Cancer Research Institute (NCRI) 2021 festival.
NCRI 2021 Initial patient findings E-poster PDF 251Kb
This is the E-poster for the initial impressions from interviews with people with a brain tumour that was presented at the National Cancer Research Institute (NCRI) 2021 festival.
MASCC 2021 Quality of life review E-Poster PDF 320Kb
This is the E-Poster for the quality of life in adult low-grade gliomas systematic review that was presented at the Multinational Association of Supportive Care in Cancer (MASCC) 2021 conference.
MASCC 2021 Initial patient findings E-Poster PDF 333Kb
This is the E-Poster for the initial impressions from interviews with people with a brain tumour that was presented at the Multinational Association of Supportive Care in Cancer (MASCC) 2021 conference.
IPOS 2021 Unmet needs review presentation PDF 451Kb
These are the presentation slides for the systematic review of unmet needs instruments that were presented at the International Psycho-Oncology Society (IPOS) 2021 conference.
