Research Projects

Autistic Spectrum Disorder Registry (North East of England)

Cerebral Palsy and Intrauterine Growth in Multiple Births: A Study Based on Data from the European Network of Cerebral Palsy Registers

Chronic Granulomatous Disorder

Cryptorchidism and Hypospadias (Feasibility Study for a Register)

Langerhans Cell Histiocytosis (British Paediatric Surveillance Unit)

Registers of Children with Cerebral Palsy

Surveillance of Cerebral Palsy in Europe

The Northern Congenital Abnormality Survey: A Collaborative Survey of Congenital Anomalies in the Northern Region

The Northern Region Young Person's Malignant Disease Registry

Obliterative Bronchiolitis Study



British Paediatric Surveillance Unit



Orphanet is a database dedicated to information on rare diseases and orphan drugs.  Access to this database is free of charge.


British Paediatric Orphan Lung Disease Registry (BPOLD)


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