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Autistic Spectrum Disorder Registry (North East of England) Cerebral Palsy and Intrauterine Growth in Multiple Births: A Study Based on Data from the European Network of Cerebral Palsy Registers Chronic Granulomatous Disorder Cryptorchidism and Hypospadias (Feasibility Study for a Register) Langerhans Cell Histiocytosis (British Paediatric Surveillance Unit) Registers of Children with Cerebral Palsy Surveillance of Cerebral Palsy in Europe The Northern Congenital Abnormality Survey: A Collaborative Survey of Congenital Anomalies in the Northern Region The Northern Region Young Person's Malignant Disease Registry Obliterative Bronchiolitis Study
Links British Paediatric Surveillance Unit
ORPHANET Orphanet is a database dedicated to information on rare diseases and orphan drugs. Access to this database is free of charge.
British Paediatric Orphan Lung Disease Registry (BPOLD)
A patient and parent forum can be found at http://www.bpold.co.uk/phpBB/
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