Researchers from Newcastle University want to talk to people from South Asian communities (for example Bangladeshi, Pakistani, or Indian) and their families who are living at home with memory loss (this is often called dementia). This is so that we can learn about their care experiences and how these experiences differ across different groups.

You are invited to take part in our study. Before you decide if you would like to take part, please read the information below.

What does the study  involve?

Interviews 

A researcher would like to talk to you about your experience of care, memory loss and living at home in two separate interviews, one after you agree to participate and another interview in 6-12 months.

Interviews will take place in your home or in a quiet place that suits you. Interviews will be relaxed and last for approximately one hour, depending on your wishes.

A family member or friend can help you in the interview or answer questions on your behalf. We can also arrange an interpreter to help you with the interview.

Extra visits

A researcher may also like to spend time with you on other occasions over the next 12 months. For example, the researcher might ask to join one of your daily activities or visit you for an hour or two. Visits would be relaxed and at a time and place that suits you. A family member or friend can be there too, if you like.

You can take part in the interviews and decide not to take part in these visits.

Who is invited to take part?

People from South Asian communities (such as Bangladeshi, Pakistani or Indian) who are either:

1. living at home with dementia (or memory loss), or
2. care for a family member or close friend who is living at home with dementia (or memory loss).

Will I be compensated for my involvement?

You will be offered a £20 shopping voucher as a thank you for taking part in each interview.

What about memory problems?

The researcher has experience of leading research within communities and is trained about conducting research with people with memory problems. A family member or friend can help you to take part if you would like.

Has the study been approved?

The study has been approved by Newcastle University Research Ethics Committee (reference number 2773/43721).

How is this research funded?

The research is funded by a grant from the National Institute of Health Research. Newcastle University are acting as a sponsor.

Questions

Questions are welcome. Please contact the researcher, Ana-Maria Cîrstea, at ana-maria.cirstea@ncl.ac.uk or at 07760998089 (call, text, or WhatsApp) with any questions about the project.

GDPR

For further information on data protection and GDPR please click on https://www.ncl.ac.uk/data.protection/

Images sourced from the Centre for Ageing Better.