Dementia Care in South Asian Communities Study

Dementia is a national and global priority, with nearly one million people estimated to be living with dementia in the UK. Research shows that rates of dementia are rising faster among ethnic minority communities that the rest of the population.  However, many people living with dementia in these communities face barriers to accessing formal care and support. They are often cared for by unpaid family members within their homes, who themselves often experience economic hardship and poorer health.  The communities are often excluded from research.

Our project explores the diverse care experiences of people from South Asian communities living with dementia or memory concerns in Newcastle, Nottingham and Birmingham. We are interested in how social factors, such as gender, age or social class, shape how people living with dementia are cared for within communities. We are also interested in how carers receive support while caring for their loved one living with dementia.

This research is conducted by a multi-disciplinary team in collaboration with the University of Newcastle, the University of Nottingham, and King's College London.

How can I take part?

We are currently looking for participants for our research in Newcastle upon Tyne. We welcome participants who:

  • are from South Asian communities (for example Bangladeshi, Pakistani, or Indian);
  • are living with or caring for someone with memory concerns (or dementia);
  • are living in the North East of England (e.g. Newcastle, Gateshead, Sunderland or Northumberland).

Research participants will be offered £20 shopping vouchers to thank them for their time.

Find out more information on our Taking part in the research page.

Images sourced from the Centre for Ageing Better