Who has altered eating?

Our definition of 'altered eating' is changed state of any combination of physical, environmental, emotional and social interactions with food and eating that has a negative impact on health and wellbeingIt is a deliberately broad definition. While we recognise that there are many conditions and circumstances where eating difficulties are common, many of the complications of eating difficulties are shared across conditions and circumstances. This is why we consider altered eating as a trans-diagnostic and trans-dsiciplinary concern.

Some illness experiences of altered eating may be short term (for example a bout of oral thrush, or during chemo/radiotherapy) or long term (for example oral thrush as a persistent symptom of HIV/AIDs or cancer; or long term changes due to cancer and chemo/radiotherapy). The Altered Eating Research Network is interested in both, but we feel it is important to make the distinction  between time-limited and chronic altered eating.

Some experiences of altered eating may be environmental (eg climate impacts/pollution altering sensory perception) or social (the experience of migration and changed access to food/social inequalities)

We currently have research underway, by students and experienced researchers, investigating altered eating in Cancer, Parkinson's Disease, Primary Sjogren's Syndrome, Autism, Peanut Allergy, Cystic Fibrosis, Pregnancy, Weight cylcling (yo-yo dieting) and Facial Palsy. But we think there may be many other conditions where altered eating difficulties go largely un-recognised and un-supported.

We would welcome researchers to contribute to the network with studies of altered eating in other areas, and to help us understand the scale of altered eating problems. These are some of the conditions and issues we've identified, just to give you examples, but in reality the list is a lot longer . Get in touch if you think a condition or area deserves some attention.

  • Ageing
  • Allergic rhinitis
  • Alzheimer's
  • Anosmia
  • Anxiety
  • Austerity
  • Avoidant/restrictive food intake disorder (ARFID)
  • Bereavement
  • Burning Mouth Syndrome (primary or idiopathic)
  • Cancer
  • Cerebral palsy
  • Chemo/radiotherapy
  • Chronic fatigue syndrome
  • Chronic Obstructive Pulmonary Disease (COPD)
  • Climate change
  • Constipation
  • Cystic fibrosis
  • Dementia
  • Dentures
  • Depression
  • Diabetes
  • Drug use/medication side effects
  • Eating Disorders: Anorexia Nervosa, Binge Eating Disorder, Bulimia Nervosa
  • Edentulism (toothlessness)
  • Ehlers-Danlos syndromes (EDS)
  • Environment
  • Food aversions caused by chemo/radiotherapy
  • Food bank reliance
  • Food minorities
  • Halitosis
  • Head injury
  • Hematopoietic stem cell transplantation
  • Huntington’s disease
  • Hypothyroidism
  • Inequalities
  • Inflammatory bowel disease (IBD)
  • Institutionalisation
  • Irritable bowel syndrome (IBS)
  • Learned helplessness
  • Menopause
  • Multiple sclerosis
  • Obesity
  • Oral candidiasis (oral thrush)
  • Parkinson's disease
  • Peanut allergy
  • Pollution
  • Poverty
  • Pregnancy
  • Professional - for actors, dancers, others where eating/non-eating is prescribed
  • Ramsay Hunt syndrome
  • Sjogren's syndrome
  • Smoking
  • Social determinants
  • Stroke
  • Toxic exposure
  • Trauma
  • Stress
  • Weight cycling