In January 2019, adults on the autism spectrum (who had participated in the study, ‘Methods of Diagnosis for ASD in Adults’), their friends and relatives were invited to attend a free event where findings from the study were shared.
During the meeting the research team: presented the research findings about diagnostic services and post-diagnostic support; showed what UK clinicians thought were features of optimal autism diagnostic services for adults; sought views from those in attendance on those features, and the most important changes that could be made for autism diagnostic services for adults. Please see programme attached: Autistic Adults' Workshop Programme-Adult Autism Spectrum diagnosis and post-diagnosis support
In November 2018, the research team hosted a workshop for clinicians, to share findings from the ‘Methods of Diagnosis for ASD in Adults’ study. Please click on the following link for more details about this study: https://research.ncl.ac.uk/adultautismspectrum/cohortprojects/
The aims of the workshop were: to disseminate the research findings to clinicians, and inform everyday clinical practice, and diagnostic and post diagnostic service design; to share information about a new adult diagnostic measure that can be used in clinical services; to inform a report that will be made publicly available, including to clinical teams, autistic people, policymakers and commissioners. Please see programme attached: Clinicians' Workshop Programme-Adults ASD Diagnostic Assessment and Post-diagnosis Service Provision
In 2017, Newcastle University and Autistica hosted a collaborative workshop to establish priority research areas to improve the physical health and wellbeing of autistic people. This was a two-day Global Summit, held at Newcastle University, where world-leading researchers, autistic adults, relatives and professionals worked together to develop world-class research ideas that could improve the health and wellbeing of autistic people.
The full report from this summit can be found by clicking on the following link:
https://www.autistica.org.uk/downloads/files/Ageing-Summit-Report.pdf
In February 2016, adults on the autism spectrum, their friends and relatives were invited to attend the free event Mindful Living with Asperger's Syndrome. This event offered the opportunity to hear Chris Mitchell explain mindfulness and explore the relevance of mindfulness practice in helping overcome many of the daily challenges we all face. Attendees were able to participate in a simple mindfulness practice exercise as part of the presentation.
In October 2015, adults on the autism spectrum, relatives and professionals were invited to attend a free event at the Research Beehive, Newcastle University.
The event included the presentation 'Swans, paddling not floating: women, girls and the autism spectrum' by Catriona Stewart as well as a presentation from the ASC-UK team on experiences of setting up the Adult Autism Cohort-UK project.
During 2013, the research team consulted widely with the autism spectrum community, relatives, clinicans and researchers in lifecourse and ageing. These discussions led to a meeting on Autism Spectrum, Lifecourse and Ageing in Newcastle on 12th September 2013.
The aim of the meeting was to discuss research opportunities, and strengthen collaborations, to enable the planning of research that will make a difference to the lives of adults on the autism spectrum and their relatives.
You can read the meeting programme here:
ASD Lifecourse and Ageing Meeting Programme
You can read the proceedings of the meeting here:
Proceedings of the 2013 Newcastle meeting on ASD Lifecourse and Ageing
Autistica, the autism research charity, funds the Lifecourse and Ageing Programme at Newcastle University. This research study 'Learning about the lives of adults on the autism spectrum' will be the first study in the programme of research. Here is some information about why this important programmes of work is needed.