Your information will be kept safe according to the Data Protection Act 1998. Your personal information will be kept separate from the anonymous research data. The research team will store your personal information on a secure database at Newcastle University. The database will only be accessed by research staff working on the study and individuals from the relevant agencies or the Northumberland Tyne and Wear NHS Foundation Trust, to check the quality of the research. No personal information will ever be released to researchers or anyone else. Any information that is published will always be anonymised.
The Research Steering Committee provide expert guidance and advice to the research team.
They also advise on the overall coordination of the Autism Spectrum, Adulthood and Ageing Research Programme and communication between the research team, professionals and the autism community
The Research Steering Commitee includes health professionals, members of our research team and adults on the autism spectrum and relative of adults on the autism spectrum.
Members of the Adult Autism Spectrum - UK Research Steering Committee
Sir Christopher Ball (Steering Committee Chair)
Jeremy Parr (Chief Investigator, Clinical Senior Lecturer and Consultant, Paediatric Neurdisability)
Helen McConachie ( Professor of Child Clinical Psychology, Newcastle University)
Ann Le Couteur ( Professor of Child and Adolescent Psychiatry, Newcastle University)
James Cusack (Director of Science, Autistica)
Carol Povey (Director, the National Autistic Society Centre for Autism)
Chris Mitchell (Autism Works)
Ian Ensum (Consultant Psychologist, Bristol Autism Spectrum Service)
Pam Lawrence (North East Autism Consortium)
David Simmons (Lecturer, School of Psychology, University of Glasgow)