Handling of Personal and Sensitive Data
Identifiable or senestive data about living indiviudla require safe handling for research integrity and compliance with the law.
Using personal data in research
All research data containing personal data is subject to the Data Protection Act 1998. The Act, enforced by the Information Commissioner's Office, outlines organisations’ responsibilities to personal data. It also gives individuals rights over their data.
There are also professional bodies’ ethic codes for research to review before collecting and storing personal data. The ESRC produced a comprehensive list of ethic codes and guidelines.
Research using or collecting personal data needs ethical approval before the project starts. The Ethics Toolkit has been developed to support researchers through this process.
The overarching rule is to only collect personal and sensitive data if the research requires it. If you do need to use personal or sensitive data, the Act makes special provisions for research data as long as it fulfills all of the following conditions:
- You are using the data only for research purposes (this includes statistical and historical research)
- You do not use the information to support decisions about the research subject or any other living person
- You do not use the data in such a way that it causes substantial damage or distress to the subject
- You do not make the results of the research available in a way that identifies any of the research subjects (except if you have explicit consent from the subjects for them to be identified – see ICO guidance on Data Protection Principles)
If you use secondary data that is anonymised there is no requirement to comply with the Act. But best practice for handling data is still recommended.
If you have identifiable data that requires sharing the data needs to be anonymised.
There are excellent resources to guide you through anonymising data: