We were delighted to see that our press release related to our first major data paper was picked up the regional media resulting in an article in the Evening Chronicle.
The DEEP study held its second engagement event on the 4th July 2016. The findings from the study thus far were presented to study participants and invited members of the public. There then followed some useful discussion on the research that should emerge from the DEEP study which will focus on implementing and testing changes to the care pathways which are likely to include: stratifying care according to risk; using the full range of health care professionals across a hub and spoke system of specialist and non-specialist based care providers.
We'd like to say a big thank you to all of you who were involved in this very useful discussion event.
Part of the DEEP study's design was to interview participants over the course of the study in order to understand, from their perspective, the care pathways and impact of persistent mouth, face, or head pain. This phase intended to look for common themes amongst the verbal explanations participants gave of their care pathway and their condition. This phase has now completed and some of the findings are briefly summarised below. Other findings from this phase are detailed in the abstracts we have presented at international conferences (see publications section) and a paper on the data from this phase is currently in preparation.
Summary of broad findings:
Participants described complex care pathways in which they saw multiple practitioners in primary (community based) and secondary (hospital or specialist based) care settings over a period of several months or years. Participants described attending multiple appointments and often trying several different prescription medications in an attempt to manage their pain. Those referred to secondary care attended a range of specialisms in medical and dental hospital settings including: neurology, pain clinics, oral surgery, ear nose and throat surgery, physiotherapy, ophthalmology, maxillofacial surgery.
For some participants, the time between first attending and receiving a diagnosis and effective treatment was short, but others described frustration at the difficulty of obtaining a diagnosis and effective pain management for extended periods of time.
DEEP presented its preliminary and interim analyses of baseline data (data participants give at entry to the study) at the International Association of Dental Research's (IADR) Annual Scientific Meeting in Cape Town in June 2014. The abstracts (short summaries) of the material presented are freely available at the links below and papers containing the full results are being written up as we speak. More soon....
We held our first dissemination event for participants on the 15th Septmeber 2014. The event was incredibly helpful for the study team to get feedback on the conculsions we are drawing from the data we are collecting from all participants. We want to thank all the participants present for the day for giving up more of their time and giving us such helpful feedback on the topics discussed. Our next study newsletter will contain a brief summary of the day's proceedings
The Autumn/Winter quarter's Pain News featured the DEEP study in the President's section. The article explained the study and its importance and expressed the support of the British Pain Society for the study.
Campbell, W. From the president. Pain News September 2014 12(3):139
Phase 1 of the study closed at the end of July 2014 with our recruitment target achieved on time. So many thanks to all of our participants and the health professionals who helped recruit them.
We now will follow-up all participants for twenty-four months collecting questionnaire data every six months. We will however begin to publish our data as each six month data collection point closes for all participants so please keep an eye on our news section for updates and relevant links. We will also try and keep all informed with our newsletter for participants.
For those of you who are based in (clinical) science or those of you who are just interested in the "nitty gritty" of the study's aims, objectives and methods the protcol for the study is now freely available (on open access) at the link below.